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Disability confidential. Informing. Empowering. Agitating.
Life After Paralysis is a blog that represents a variety of paralysis community members. It is a place for open conversation about the issues and the interests of people living with paralysis, their family, friends, caregivers, and the professionals that serve them. Comments are welcome!
 
The opinions expressed in these blogs are the author's own and do not necessarily reflect the views of the Christopher & Dana Reeve Foundation.

Most Recent Life After Paralysis Blog Posts

A couple of weeks back, I talked about the increasingly popular notion in medicine that a purposeful life can seriously impact your health, in a good way. The piece was a little heavy on research and theory and a little light on personal experience. Why I care about this stuff grows out of what happened in my own life. Something I learned from Victor Frankl,... more...
Posted by Allen Rucker on Life After Paralysis Jul 29, 2014 3:35 PM EDT
July 26, 2014 marked the 24 th anniversary of the ADA, I encountered many forms of celebrations, citations and congratulations on the bestowing of civil rights on people with disabilities in America. In my mind I imagined, I’m a visual cartoon thinker, a monarch touching a sword to both of my shoulders as I sat proudly fixed and  unflinching... more...
Posted by Candace on Life After Paralysis Jul 27, 2014 3:07 AM EDT
We all catch a cold or the flu from time to time and if your anything like me, you want it gone, now or at least feel back to my old self while the malady weasels its way out of my body and mind. There are plentiful over-the-counter medications that have one purpose, decrease the uncomfortable symptoms of the illness but most have unfavorable reactions with... more...
Posted by Candace on Life After Paralysis Jul 24, 2014 2:00 AM EDT
When I was growing up, I used to think of Winter as the most dangerous season. It required the most work in preparation for its arrival, as it was necessary to stock up on firewood and to put the snow tires back on the family car for another season. Electric bills shot up, as the furnace worked hard to keep our house warm throughout the Winter. Periods of... more...
Posted by Michael Collins on Life After Paralysis Jul 21, 2014 3:18 PM EDT
I take discrimination and oppression very personally because I know first-hand the dehumanizing affects of both of them, how they feel, what they look like and how they smell. Yes, I said discrimination and oppression have a smell, they smell like fear, the fear of the unknown, the fear that comes from ignorance and the ultimate true definition of fear,... more...
Posted by Candace on Life After Paralysis Jul 19, 2014 8:05 PM EDT
The inside-your-head interaction of brain and body, beyond the social nature of disability and even beyond medicine alone, is something I’ve been intrigued with since first becoming paralyzed. I am pretty sure that my own state of mind at the time (including a super high stress level) had something to do with my contracting the neuroimmune... more...
Posted by Allen Rucker on Life After Paralysis Jul 18, 2014 7:34 PM EDT
In June 2013 I posted a blog to this site titled Promoting Van Rental Opportunities . In that blog I complained about the failure of mainstream car and van rental companies to provide ramp or lift-equipped vehicles in their extensive fleets and, when or if they did provide them, to rent them at comparable rates to those passenger or cargo vans available in... more...
Posted by Michael Collins on Life After Paralysis Jul 12, 2014 4:06 PM EDT
Caregiving, whether it is for an adolescent child, an adult child, a spouse or any relative is not an exact science. Everyone's experiences are different. In my case, I am taking care of my 23-year-old son who was injured three years ago while making a tackle during a college football game. While we have accepted "our new normal," I think... more...
Posted by KarenLeGrand on Life After Paralysis Jul 11, 2014 10:52 AM EDT
A few months back, I traveled to the countries of Georgia and Armenia as a guest of both Embassies’ for the U.S. Speaker and Specialists Program; this program is just one of the many State Department programs that support U.S. and foreign relationships. The trip was a blast as well as an intense schedule of meetings and activities, but... more...
Posted by Candace on Life After Paralysis Jul 8, 2014 12:06 PM EDT
When I’m home I have a twice a week routine that I carry out, religiously. It includes a couple provisions resupply shop stops, the post office and the copy center. The post office is always my first stop to pick up my mail. I could have home US mail delivery, it would create a great amount of ease for me but I like the social interaction that occurs at the... more...
Posted by Candace on Life After Paralysis Jun 30, 2014 11:52 PM EDT
It is usually pretty hard to remain upbeat when dealing with a new spinal cord injury or other type of paralyzing disability, but I think a change is overdue. The first days and weeks following an injury, or post-diagnosis for some "crippling" disease, are usually filled with a constant series of frank discussions warning patients and their... more...
Posted by Michael Collins on Life After Paralysis Jun 24, 2014 7:53 PM EDT
“I cried because I had no shoes until I met the man who had no feet." My mother loved adages – she thought the whole of life could be summed up in a catchy adage – and the above was one of her favorites. I heard it first when I was six, probably begging for something frivolous, and I never forgot it. She thought it was from the Bible, as do most people, I... more...
Posted by Allen Rucker on Life After Paralysis Jun 23, 2014 4:01 PM EDT
It has been several years since I retired from government service, but I have kept involved through my volunteering on several nonprofit boards and advisory committees. None of those commitments have paid much, in fact they actually pay nothing at all, but it is good to be able to contribute and pay society back in some manner for the good life I continue... more...
Posted by Michael Collins on Life After Paralysis Jun 20, 2014 6:36 PM EDT
Many of us – myself most definitely included – spend a lot of time cataloging all the hardships that the world puts in the way of our ability to experience a full and fulfilling life. And much of that finger-pointing is directed to government agencies, federal, local, and state. But what if those agencies, especially the ones who dole out money, not longer... more...
Posted by Allen Rucker on Life After Paralysis Jun 16, 2014 3:20 PM EDT
For the last three and a half weeks, I have been as idle – bed-bound idle -- as at any other point in my entire life. I was forced to do nothing by a doctor, of course. I didn’t just choose to be a slug. Many of you are much more bed-centric than I am and are much more expert on the long term effects of bed life. To me, a novice, this protracted period of physical... more...
Posted by Allen Rucker on Life After Paralysis Jun 2, 2014 4:14 PM EDT
The Seventh Session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities (CRPD) will be convening at the United Nations during June 10-12 of this year and I am super psyched to be attending. There are many reasons I’m impassioned to sit in on this assembly, but one that is a massive stand out is Christopher... more...
Posted by Candace on Life After Paralysis May 31, 2014 11:55 PM EDT
A state legislature that didn't do the job they were elected to do has failed to designate sufficient funding for transportation in our state budget. The aftermath of that failure to fund will be promised cuts in transit service throughout our county; over 150 routes will be impacted, with 72 being eliminated altogether. The other 84 will have... more...
Posted by Michael Collins on Life After Paralysis May 30, 2014 6:58 PM EDT
I was recently spinning through the planet of facebook sphere, perusing personal stories and worldly articles of interest when a report caught my eye that brought me to a screeching halt. As I read it my mind called up Mary Shelly’s novel The Last Man a story about people fighting to remain alive in world poisoned by a plague. more...
Posted by Candace on Life After Paralysis May 27, 2014 1:45 PM EDT
I like to think that I am a patient man, but sometimes my patience gets pushed to its limit. That is the situation when it comes to using voice recognition software effectively. For years I avoided using it, as it didn't seem to be as fast or as accurate as typing with the knuckle of the pinky finger on my left hand. My typing has been timed at 15 words per... more...
Posted by Michael Collins on Life After Paralysis May 26, 2014 6:02 PM EDT
If I were running things, not that anyone has asked, I would issue an executive order to place the word “special” in relation to people with disabilities in the same category of socially unacceptable words as the notorious n-word, the r-word for people with intellectual disabilities, the k-word for Jews, and a hundred other... more...
Posted by Allen Rucker on Life After Paralysis May 23, 2014 9:58 AM EDT

Most Recent Comments

Vijayan, feel free to repost this blog on your own blog. I hope some people out there will know that they are not alone i...
Hi Allen can I use your story on my blog ? As sooner or later all wheelchair bound people will end up with pressure sore o...
I get so excited when I know someone reads my writing, thank you Georgia :) for the comment.
Excellent reminder.
Michael, you and I have a mutual appreciation society going. I was shocked after a few years after paralysis how "nor...

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